When two-year-old Jaxon Barnes developed a “hard tummy”, his mother took him to the hospital thinking he had a common infection — but it turned out to be something much more sinister. Hayley Barnes, 33, from Carlisle, a city in Cumbria, in England’s north, noticed the right side of Jaxon’s stomach had become hard in August 2022 but initially the little boy, who was just 11 months old at the time, wasn’t in any pain.
“Then on Boxing Day — four months into his diagnosis — I got a phone call from the consultant to say that Jaxon wouldn’t be on the transplant list. “Jaxon became unique — being the only one to be having treatment, and then it spread while undergoing treatment. “The most difficult moment was having to sit in the consultant’s office having a conversation about where you want your son to die.
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