OPINION: Reporting from the front lines of Stage 4 breast cancer

Mary Katzke, behind, gets a hug as Sharyl Toscano smiles under the starting arch before the start of the 2023 Alaska Run For Women at UAA in Anchorage on Saturday, June 10, 2023.

The second thing is understanding our manic existence of living from scan to scan. “Progression” is not a good thing with cancer. It means the current meds aren’t doing their job and while there are many drugs in the chain, the interval between them gets shorter and shorter — and the side effects worse. The ticking clock gets louder on the projected lifespan. We have to try to be patient with petty concerns and inappropriate comments from loved ones .

We are ridiculed about using ‘Dr. Google,’ but the truth is the more informed we are, the better partners we can be in this journey. We can find out about conferences for instance, that may be worth attending. Clinical trials that might suit our particular diagnosis. We seek out support groups for our specific situations, as in “Newly Diagnosed Stage 4″ and “HBOC” , our particular genetic mutations, off-label drug use, alternative treatments, and even ways we want to be memorialized.

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