Evie was a ‘perfectly healthy kid’. Then she was diagnosed with DIPG

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Nine-year-old Evie was a “perfectly healthy kid” running around at play dates and racing off to school when she started getting migraines. They went away, so her doctors and family thought nothing of it — until Evie complained of “seeing double” while playing tennis in December 2020.

Groundbreaking research is promising hope for patients with DIPG. Evie’s doctor sent her to the Sydney Children’s Hospital for neurological testing. “That’s when the whole nightmare began,” mum Bridget Poolman told 7NEWS.com.au. “They called us into a room and said they found a mass.” Testing confirmed it was diffuse intrinsic pontine glioma — a highly aggressive and difficult-to-treat brain tumour.

 

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