By Ahmed ShawkatCourtesy of the Reda family— Roqaia Reda was born on July 13, 2020, in Alexandria, Egypt. She seemed a happy and healthy baby girl for her first six months, but then her parents started noticing some unusual symptoms. After a series of tests, Roqaia was diagnosed with spinal muscular atrophy , a rare degenerative neuromuscular disorder that leaves patients without control of their bodies.
So, Roqaia's family looked for help. A crowdfunding effort was launched on social media, and after a slow start, it started gaining traction as actors, singers, athletes and other celebrities helped spread the word. The moment resonated online, and Roqaia's father Mohammed Reda told CBS News that"donations were doubling and jumping afterwards."
But as neighbors joined Roqaia's family to celebrate the victory, they also chanted in support of two other little girls, twins who live more than 100 miles away. "This case is harder," he told CBS News."You don't want to be in a position where you leave the mother with a choice. Like, what if we collect enough money for one shot only, which one will the mother give it to?"
Horrible that these Trillion dollar industries sit back and watch working people try to come up with millions to save a young girl when the drug company could have donated the drugs, cut the costs. they pay each other hundreds of millions while poor people die everyday.
Maybe the problem is that it’s 2 million dollars.